Written by Lisa Sencen on February 4, 2016

On Wednesday, EURORDIS released the official, global video for 2016 Rare Disease Day. The video focuses on the special moments in the lives of people living with a rare disease. EURORDIS says, “everybody experiences those special moments with their relatives, children, friends and colleagues. For people living with… Read More
Written by Jennifer Huron on September 16, 2015
Theme: Patient Voice
Slogan: Join us in making the voice of rare diseases heard
It’s here! As the official sponsor and host of Rare Disease Day in the U.S., NORD is excited to announce the theme for Rare Disease… Read More
Written by Jennifer Huron on September 16, 2015

Theme: Patient Voice
Slogan: Join us in making the voice of rare diseases heard
As the official sponsor and host of Rare Disease Day in the U.S., NORD is excited to announce the theme for Rare Disease Day… Read More
Written by Jennifer Huron on May 28, 2015

Madrid and Washington, D.C.—May 28, 2015—The global voice for rare disease patients launches today. More than 60 patient representatives from 30 countries are gathering in Madrid, Spain for the inauguration of Rare Diseases International (RDI) and to adopt a joint declaration… Read More
Written by admin on December 17, 2014

Join us on February 28th for this world wide event.