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Archives for: April 28th, 2021

World Orphan Drug Congress 2021

Written by Valaree DonFrancesco on April 28, 2021

Join over 1,000 rare disease stakeholders virtually at the World Orphan Drug Congress on Wednesday, April 28, 2021. The conference has over 50 speakers, including NORD’s President and CEO Peter L. Saltonstall, tackling topics on advanced therapies, clinical development, rare disease advocacy, and more.

Register for your free pass today: Read More

Running on Air for Rare Disease Day

Written by Lisa Sencen on February 11, 2016

“I want to shake up what people think is possible,” says Mary Kitlowski – “ both people with rare diseases, and people without. If I can make a difference by doing it, it makes it worth it.”

Mary has taken on what for most seems insurmountable – running races… Read More