Written by Lisa Sencen on January 8, 2019
Each year on the last day of February, the rare disease community comes together on Rare Disease Day to raise awareness for millions of people who are impacted by rare diseases.
This year’s Rare Disease Day is just 51 days away! As the Official… Read More
Written by Lisa Sencen on September 12, 2016
This summer marked our one-year anniversary of hosting the Rare Disease of the Day campaign on our Facebook page and website. It has been a productive campaign, sharing information on over 200 rare diseases, in line… Read More
Written by Jennifer Huron on December 4, 2015
Sudden Infant Death Syndrome (SIDS) is the latest rare disease to have trended on Facebook, following the release of a new study in Pediatrics journal on December 2. The study says that there are other factors, such as babies being exposed to smoking, which can increase the risk of sudden… Read More