Families Archives - NORD (National Organization for Rare Disorders)

COVID-19 Resources for Non-profit Leaders and the Community

Written by Valaree DonFrancesco on March 20, 2020

The health and safety of those with rare diseases and their caregivers are always our top priorities at the National Organization for Rare Disorders (NORD). We know our members are working tirelessly to support their communities during this global crisis. Rare disease organizations have felt the impact of the coronavirus… Read More

2018 Rare Disease Summer Family Camp

Written by Lisa Sencen on May 31, 2018

NORD is proud to again be working with The Hole in the Wall Gang Camp on a rare disease summer family camp in Connecticut! the-hole-in-the-wall-gang-camp

The Hole in the Wall Gang Camp opens its doors to children and families to ensure… Read More

2017 Rare Disease Summer Family Camp

Written by Lisa Sencen on June 1, 2017

NORD is proud to again be working with The Hole in the Wall Gang Camp on a rare disease summer family camp in Connecticut! the-hole-in-the-wall-gang-camp

The Hole in the Wall Gang Camp opens its doors to children and families to ensure… Read More

First-Ever Rare Disease Summer Family Camp

Written by Lisa Sencen on June 2, 2016

NORD is proud to be working with The Hole in the Wall Gang Camp on the first-ever rare disease camp in Connecticut! the-hole-in-the-wall-gang-camp

The Hole in the Wall Gang Camp opens its doors to children and families to ensure that every child, no… Read More

Archives for: March 20th, 2020