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Archives for: November 26th, 2021

NORD Gives Back: Caregivers and Families

Written by Rohan Narayanan on November 26, 2021

As we reach the holiday season, let us take time to celebrate and lift up the rare disease community. For this season of giving thanks, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021 virtual Living Rare, Living Stronger Patient and Family Forum…. Read More

NORD Gives Back: Advanced and Advancing Care

Written by Rohan Narayanan on November 24, 2021

As we reach the holiday season at the end of another challenging but inspiring year, let us take time to celebrate and lift up the rare disease community.  For this season of giving, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive content from our 2021 virtual Living… Read More

NORD Gives Back: Benefits for the Newly Diagnosed

Written by Rohan Narayanan on November 22, 2021

As we reach the holiday season at the end of another challenging but inspiring year, let us take time to celebrate and lift up the rare disease community.  For this season of giving thanks, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021… Read More

COVID-19 Resources for Non-profit Leaders and the Community

Written by Valaree DonFrancesco on March 20, 2020

The health and safety of those with rare diseases and their caregivers are always our top priorities at the National Organization for Rare Disorders (NORD). We know our members are working tirelessly to support their communities during this global crisis. Rare disease organizations have felt the impact of the coronavirus… Read More