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Archives for: April 3rd, 2020

Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Written by Valaree DonFrancesco on April 3, 2020

This week, the Fanconi Anemia Research Fund (FARF) and the National Organization for Rare Disorders (NORD) launched the largest-ever study to research Fanconi anemia (FA), a patient-driven natural history registry that will result in a wide variety of clinical findings. Fanconi anemia currently has no cure.

The new study, “An observational… Read More