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Archives for: December 3rd, 2019

NORD supports Dr. Stephen Hahn’s nomination for FDA commissioner

Written by Valaree DonFrancesco on November 1, 2019

On Friday, November 1, 2019, the White House announced the nomination of Dr. Stephen Hahn, MD, as the next US Food and Drug Administration (FDA) commissioner. In response, the National Organization for Rare Disorders (NORD) offers support to the appointment of Dr. Hahn as the next FDA commissioner.

Dr. Hahn will… Read More

Information on current NATPARA® shortage

Written by Laura Mullen on October 10, 2019

On September 5, 2019, Takeda issued a recall of NATPARA® (parathyroid hormone), due to rubber particulates originating from the rubber septum of the NATPARA cartridge. As of October 9,  NATPARA® is in shortage.

NORD has reached out to the Food and Drug Administration (FDA) on behalf of… Read More