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Archives for: August 21st, 2017

NORD Issues Statement in Response to the Signing by President Trump of the Food and Drug Administration Reauthorization Act of 2017

Written by Christina Jensen on August 21, 2017

Washington, D.C., August 21, 2017Peter L. Saltonstall, President and CEO of the National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today issued the following statement in response to the signing by President Trump of the Food and Drug Administration… Read More

Providence Full and Half Marathon

Written by Christina Jensen on May 7, 2017

Running for Rare, NORD’s signature charity marathon team, will be participating in the 2017 Providence Marathon. Click here to apply.


About the Team

When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for… Read More

Boston Marathon

Written by Christina Jensen on April 17, 2017

Running for Rare, NORD’s signature charity marathon team, will be participating in the 2017 Boston Marathon. Applications for this marathon are closed.


About the Team

When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for Rare offers… Read More

Los Angeles Marathon

Written by Christina Jensen on March 19, 2017

Running for Rare, NORD’s signature charity marathon team, will be participating in the 2017 Los Angeles Marathon. Click here to apply.


About the Team

When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for… Read More