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Archives for: May 13th, 2020

US News & World Report Features NORD and Dr. Marshall Summar in “What To Do If Your Child Is Diagnosed with a Rare Disease”

Written by Laura Mullen on March 21, 2020

#NORDinthenews

NORD is featured as a rare disease resource and Dr. Marshall Summar, Chairman of NORD’s Board of Directors, is quoted extensively in an article published by US News and World Report that provides information and advice for parents dealing with a recent rare disease diagnosis for their child.

https://health.usnews.com/conditions/articles/when-your-child-has-a-rare-disease

 

NORD supports Dr. Stephen Hahn’s nomination for FDA commissioner

Written by Valaree DonFrancesco on November 1, 2019

On Friday, November 1, 2019, the White House announced the nomination of Dr. Stephen Hahn, MD, as the next US Food and Drug Administration (FDA) commissioner. In response, the National Organization for Rare Disorders (NORD) offers support to the appointment of Dr. Hahn as the next FDA commissioner.

Dr. Hahn will… Read More

Information on current NATPARA® shortage

Written by Laura Mullen on October 10, 2019

On September 5, 2019, Takeda issued a recall of NATPARA® (parathyroid hormone), due to rubber particulates originating from the rubber septum of the NATPARA cartridge. As of October 9,  NATPARA® is in shortage.

NORD has reached out to the Food and Drug Administration (FDA) on behalf of… Read More