Written by on March 15, 2017
Rare Impact Award
Frederick Kaplan, M.D.
Dr. Frederick Kaplan’s life changed the day he met a 2-year-old girl with fibrodysplasia ossificans progressiva (FOP), a debilitating and progressive rare bone disorder. In the three decades since, he has dedicated… Read More
Written by Jennifer Huron on November 3, 2016
Washington, D.C., November 3, 2016—The Fibrous Dysplasia Foundation and the National Organization for Rare Disorders announce the launch of an ambitious study to research fibrous dysplasia/McCune-Albright syndrome (FD/MAS). The new study, the FD/MAS Patient Registry, creates a platform for patients… Read More