Foundation for Rare Blood Diseases Archives - NORD (National Organization for Rare Disorders)

Scroll
To Top

donate

Advanced Search

Archives for: September 20th, 2019

Pyruvate Kinase Deficiency (PKD): Externally-Led Patient Focused Drug Development Meeting

Written by Christina Jensen on September 20, 2019

NORD and the Foundation for Rare Blood Diseases (SZB) invite you to an externally-led Patient Focused Drug Development (EL-PFDD) meeting on Pyruvate Kinase deficiency (PKD), taking place Friday, September 20.

If you are a patient, family… Read More

Upcoming Externally-Led Patient Focused Drug Development Meeting for PKD Community

Written by Christina Jensen on July 11, 2019

NORD and the Foundation for Rare Blood Diseases (SZB) invite you to register for an externally-led Patient Focused Drug Development (EL-PFDD) meeting on Pyruvate Kinase deficiency (PKD), taking place Friday, September 20. Scholarships are available to… Read More

Tweets From NORD

“I was able to meet and have dinner with one of my Peace Corps friends. We hadn’t seen each other since we left Rom… https://t.co/DLR6mgICIY23 hours ago
Did you advocate for #newbornscreening this week? Take action year round by becoming a member of #NORD @RareAction… https://t.co/kfVWKtZFiFyesterday
Friday, 9/20, you're invited to join #NORD & Fdn for Rare Blood Diseases (SZB) for an externally-led PFDD meeting o… https://t.co/KcAvdr2Q7yyesterday
#ICYMI: #NORD is inviting the public to share research with 800+ leaders in the #raredisease space at the 2019… https://t.co/QCo1HuMsjwyesterday

Follow @RareDiseases

Alone we are rare. Together we are strong.®

For Patients and Families

For Clinicians and Researchers

For Patient Organizations

Advocate

Get Involved

Home

About

News

Events

Contact

Careers

Brand Usage Guidelines

Sign Up for NORD News!

Follow NORD

Site Map

Website Credits

Privacy

Copyright ©2019 NORD - National Organization for Rare Disorders, Inc. All rights reserved. NORD is a registered 501(c)(3) charity organization. Please note that NORD provides this information for the benefit of the rare disease community. NORD is not a medical provider or health care facility and thus can neither diagnose any disease or disorder nor endorse or recommend any specific medical treatments. Patients must rely on the personal and individualized medical advice of their qualified health care professionals before seeking any information related to their particular diagnosis, cure or treatment of a condition or disorder.