Frank Sasinowski Archives - NORD (National Organization for Rare Disorders)

NORD Issues Statement on FDA Rejection of Citizen Petition

Written by Jennifer Huron on September 17, 2015

On September 10, the Food and Drug Administration (FDA) notified the National Organization for Rare Disorders (NORD) that it was rejecting NORD’s Citizen Petition submitted in 2011 to request that a documented policy be established regarding the review of… Read More

NORD Board Member Testifies Before Energy & Commerce Health Subcommittee

Written by Mary Dunkle on May 22, 2014

Frank J. Sasinowski, representing the National Organization for Rare Disorders (NORD), was one of five individuals who testified on Tuesday before the U.S. House Energy and Commerce Health Subcommittee on advancing the development of treatments for Americans with unmet medical needs. Read More

Archives for: September 17th, 2015

NORD Issues Statement on FDA Rejection of Citizen Petition

Written by Jennifer Huron on September 17, 2015

NORD Board Member Testifies Before Energy & Commerce Health Subcommittee

Written by Mary Dunkle on May 22, 2014

Alone we are rare. Together we are strong.®