Fred Upton Archives - NORD (National Organization for Rare Disorders)

House to Vote on New Version of 21st Century Cures Act Tomorrow

Written by Jennifer Huron on November 29, 2016

We are excited to announce that U.S. lawmakers have finally reached an agreement on the 21st Century Cures Act, a game-changer for patients with rare diseases. This agreement comes more than one year after the House passed its original version of the bill. The first vote is expected to take place… Read More

American Plasma Users Coalition (A-PLUS) Applauds Recent Move by Department of Health and Human Services to Limit Out-of-Pocket Costs

Written by Jennifer Huron on September 21, 2015

As part of the American Plasma Users Coalition (A-PLUS), NORD and several of its member organizations submitted letters to Department of Health and Human Services Secretary Sylvia Mathews Burwell and three House Chairmen, Reps. Paul Ryan, John Kline and Fred Upton, expressing support for HHS’s recent… Read More

Archives for: November 29th, 2016

House to Vote on New Version of 21st Century Cures Act Tomorrow

Written by Jennifer Huron on November 29, 2016

Alone we are rare. Together we are strong.®