Written by Lisa Sencen on July 29, 2019
The following story was submitted by Kayte and Ashley in honor of July’s Rare Spotlight, Gastroschisis. In this story, Kayte and Ashley reflect on their journey with the condition.
When I received my daughter Ashley’s gastroschisis diagnosis in 2005, there were no options… Read More
Written by Lisa Sencen on July 20, 2019
The following story was submitted by Nicole in honor of July’s Rare Spotlight, Gastroschisis.
In this story, Nicole reflects on her difficult journey with the condition; an outlook her doctor’s were not expecting.
I’m a 38… Read More
Written by Valaree DonFrancesco on August 15, 2018
Washington, D.C., August 15, 2018 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, and Healthline Media, the second largest health information site with 90 million monthly visitors, have announced the recipients of the… Read More