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Archives for: August 29th, 2019

NORD Webinar – Gene Therapy: Yesterday, Today and Tomorrow

Written by Lisa Sencen on August 29, 2019
Have you heard about gene therapy? Do you want to learn about the history of gene therapy, which gene therapies are currently available and what the future may hold?
We will cover these topics and more in a free webinar on August 29 at 12:00pm EST.  Join us as Dr. Cenk… Read More

McCarthy Story in Honor of Rare Disease Day

Written by Lisa Sencen on February 12, 2019

The following story was submitted by Lindsey McCarthy in honor of Rare Disease Day. In this story, Lindsey shares her family’s journey of receiving a diagnosis for their son, James, of a CNTNAP1 mutation. Read on to learn how the McCarthy’s have worked to find other families who… Read More

NORD 35th Anniversary Blog Series: 2010-2018 (Present)

Written by Jennifer Huron on September 6, 2018

2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary.  For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate.  Our policy, research and other efforts have played a significant… Read More