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Archives for: June 22nd, 2020

NORD and FMC’s Gene Therapy Survey: A Call to Action for Healthcare Professional Education

Written by Laura Mullen on April 16, 2020

The results of a survey on gene therapy conducted by NORD and Frontline Medical Communications (FMC) among physicians and other healthcare professionals were recently announced. The responses indicated significant knowledge gaps among providers across 14 specialty areas.

For instance:

  • 63% of respondents were unaware of current FDA-approved gene therapies.
  • Respondents reported… Read More

NORD Webinar – Life After Gene Therapy

Written by Valaree DonFrancesco on December 18, 2019

This webinar will feature individuals who have undergone gene therapy procedures. Don’t miss this exciting opportunity to hear people share their personal journeys with gene therapy. What were their symptoms before gene therapy? How did they find a clinical trial or a doctor? What were the necessary preparations… Read More

NORD Webinar – Understanding the Gene Therapy Process and Aftercare

Written by Valaree DonFrancesco on November 20, 2019
During this webinar, clinicians who deliver potentially life-changing gene therapies will explain the gene therapy process and aftercare. Don’t miss this exciting opportunity to hear Dr. Jerry Mendell, Neurologist and Principal Investigator for the Center for Gene Therapy at Nationwide Children’s Hospital and Dr. Barry Byrne, Associate Chair of Pediatrics… Read More