Written by Jennifer Huron on September 29, 2016
Washington, D.C., September 29, 2016 – The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, released the following statement from President and CEO Peter L. Saltonstall following President Obama’s… Read More
Written by Jennifer Huron on September 23, 2016
Unanimous vote extends the Rare Pediatric Disease Priority Review Voucher Program with important policy changes through December
Washington, D.C., September 23, 2016 – On Thursday, the Senate reached an important compromise to accelerate new treatments to help 15 million sick children with rare diseases.
Led by Senators Robert Casey (D-PA), Johnny Isakson (R-GA),… Read More