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Archives for: August 1st, 2013

Informed Consent in Biobank Research

Written by Marsha Lanes on August 1, 2013

Genetic biobanks, storage facilities for DNA, genetic data and tissue samples, are becoming more prevalent in the rare disease community.   The information and samples can be made available to approved researchers for clinical studies, but unlike clinical trials, there is usually no personal benefit or follow-up provided to participants.  Read More