Written by Jennifer Huron on July 26, 2018

Editor’s Note: During the week of July 23-27, 2018, NORD featured pheochromocytoma as the Rare Disease of the Week in order to raise awareness for this rare type of cancer. The blog post below was written in November 2015, sharing the story of the Yankanich family who has been… Read More
Written by Jennifer Huron on November 9, 2015

Laurie and Chuck Eallonardo were thrilled at the birth of their twins, Jenna and Caden. Laurie felt happy and relieved that she had been able to carry them for 38 weeks, almost to full term, which can be harder with twins.
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Written by Jennifer Huron on October 29, 2015

“We are proud to support the efforts of important organizations like NORD, and to have an employee base so willing to give to the communities and charities that matter to them most.” –Tom Rusin, CEO of HomeServe USA
Earlier this month, HomeServe USA announced a donation of over $26,000… Read More
Written by Jennifer Huron on August 26, 2015

“I really appreciate all that NORD does for those living and managing their lives with rare disorders.” -Paula Mann
Paula Mann is a mother of a boy, Garrett, born in 2008 with Mitochondrial Disease, a rare disease that can be present at birth or come on later in life…. Read More