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Archives for: September 26th, 2017

NORD Issues Statement on Senate Leadership’s Recent Update on “Graham-Cassidy” Proposal

Written by Christina Jensen on September 26, 2017

Washington, D.C., September 26, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the latest effort to repeal and replace the Affordable Care Act:

“Senate Leadership announced today that they will not proceed with a… Read More

NORD Awards New Research Grants for Rare Disease Research

Written by Jennifer Huron on February 24, 2017

Washington, D.C.—February 24, 2017—The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has awarded seven new research grants to fund rare disease research.

Research grants awarded for 2016 Requests for Proposals include:

For the study of Alveolar Capillary… Read More