To Top

Archives for: September 21st, 2022

NORD Opens Applications for Three New Rare Disease Research Grants

Written by Rohan Narayanan on September 21, 2022

Since 1989, NORD has awarded over 200 grants totaling over $9 million in approved funding 

September 21, 2022, Washington, DC – Today, the National Organization for Rare Disorders (NORD®) announced new requests for proposal (RFP) for grant funding through NORD’s Jayne Holtzer Rare Disease Research Grants Program…. Read More

New Research Funding Opportunities Available from NORD

Written by Valaree DonFrancesco on May 24, 2018

All U.S. and international researchers are encouraged to apply by the initial application deadline of July 16, 2018


Washington, D.C., May 24, 2018 – The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, announces the… Read More

Changing the Landscape of Rare Disease Research

Written by Valaree DonFrancesco on March 2, 2018

*The following is a a guest blog posting by NORD’s Director of Research Programs, Vanessa Boulanger, originally published 2/28/18 on at`


A rare disease, by definition, affects fewer than 200,000 individuals in the United States. Up to 30 million Americans have a rare disease, and most conditions are poorly… Read More