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Archives for: August 3rd, 2016

Guest Blog: Tour For A Cure

Written by Jennifer Huron on August 3, 2016
 By Alison Rockett Frase, Guest Blogger

In 1995 our son, Joshua, was born with a very rare muscle disorder called Myotubular Myopathy; an early death was imminent for our first-born. Through the despair and dismay, a vision of faith and hope was birthed through the Joshua Frase Foundation. Our vision seemed… Read More

Guest Blog: A Parent Advocate & Author Discusses Courage

Written by Jennifer Huron on July 16, 2015

By David Cry, Guest Blogger

David CryCourage. Strength in the face of pain or grief. A tenet I have experienced on many occasions as the lead of The Adrenoleukodystrophy (ALD) Foundation. I have heard it in the words of mothers whose sons have been… Read More