Written by Jennifer Huron on August 3, 2016
By Alison Rockett Frase, Guest Blogger
In 1995 our son, Joshua, was born with a very rare muscle disorder called Myotubular Myopathy; an early death was imminent for our first-born. Through the despair and dismay, a vision of faith and hope was birthed through the Joshua Frase Foundation. Our vision seemed… Read More
Written by Jennifer Huron on July 16, 2015
By David Cry, Guest Blogger
Courage. Strength in the face of pain or grief. A tenet I have experienced on many occasions as the lead of The Adrenoleukodystrophy (ALD) Foundation. I have heard it in the words of mothers whose sons have been… Read More
Written by on March 12, 2013
Exomes are big news. Sequencing of the protein-encoding part of the genome is increasingly solving medical mysteries in children. (more…)