Harvard Medical School Archives - NORD (National Organization for Rare Disorders)

NORD Receives Grant from Anthem Foundation for Expansion of Rare Disease Database®

Written by Laura Mullen on September 25, 2018

Washington, D.C., September 25, 2018 – The National Organization for Rare Disorders (NORD) announced today it is enhancing its Rare Disease Database which serves as a valuable source of information for patients, families and caregivers in need of easy to understand language on rare diseases that are frequently… Read More

Mackenzie’s Mission

Written by Lisa Sencen on April 17, 2018

In this guest blog post submitted by Mackenzie Boedicker and her mother, Deb, we share the story of one woman’s mission to alleviate the struggles for those who live with amyloidosis. Mackenzie was diagnosed in 2017 and is doing well as a full-time research assistance and founder of a… Read More

Archives for: September 25th, 2018

NORD Receives Grant from Anthem Foundation for Expansion of Rare Disease Database®

Written by Laura Mullen on September 25, 2018

Mackenzie’s Mission

Written by Lisa Sencen on April 17, 2018

Alone we are rare. Together we are strong.®