Written by Valaree DonFrancesco on January 14, 2021
As part of its expanded outreach to medical professionals, NORD recently partnered with Frontline Medical Communications (FMC), a division of Medscape, on Rare Diseases Report: Rheumatology and Rare Diseases Report: Cancers, both published in late 2020.
The two special issues are the latest in a… Read More
Written by Valaree DonFrancesco on September 25, 2018
Washington, D.C., September 25, 2018 – The National Organization for Rare Disorders (NORD) announced today it is enhancing its Rare Disease Database which serves as a valuable source of information for patients, families and caregivers in need of easy to understand language on rare diseases that are frequently… Read More
Written by Lisa Sencen on April 17, 2018
In this guest blog post submitted by Mackenzie Boedicker and her mother, Deb, we share the story of one woman’s mission to alleviate the struggles for those who live with amyloidosis. Mackenzie was diagnosed in 2017 and is doing well as a full-time research assistance and founder of a… Read More