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Archives for: June 29th, 2017

Rare Disease Advisory Council Bill Moves through Pennsylvania House

Written by Lisa Sencen on June 29, 2017

Update: June 29, 2017–Today, H 239, a bill that would establish a Rare Disease Adviosry Council and provide Pennsylvania’s 1.2 million rare disease patients with a voice in the state government, passed in the Senate. Director of State Policy at the National Organization for Rare Disorders (NORD), Tim Boyd, said,… Read More