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Archives for: July 12th, 2022

Take Action: Share Your Story with the White House and Help Explain Why Medical Nutrition Is Critically Important

Written by Valaree DonFrancesco on July 12, 2022

Many people with rare diseases require medical nutrition prescribed by a healthcare provider to prevent permanent disability and mortality, allow for normal growth in children and adults, or provide adequate nutritional intake. Despite medical necessity, many insurers do NOT cover medical nutrition. As a result, people with certain rare diseases and their families… Read More

Narcolepsy Network

Written by Lisa Sencen on October 5, 2015

The Narcolepsy Network is a national voluntary organization that was formed to serve the needs of people with narcolepsy. Narcolepsy Network is gearing up for their annual conference which will be taking place this coming weekend, October 9-11 in Minneapolis, Minnesota. Click here to learn more about the… Read More