Wednesday, November 15
7:00 p.m. EST
With the December 15th deadline to select an Affordable… Read More

NORD Issues Statement Opposing the “Graham-Cassidy” ACA Replacement Plan

Written by Christina Jensen on September 19, 2017

The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the “Graham-Cassidy” plan to repeal and replace the Affordable Care Act (ACA):

“The Senate is currently considering a proposal put forward by Senators Graham, Cassidy, Heller,… Read More

Advance the Dialogue at the NORD Rare Summit

Written by Christina Jensen on August 15, 2017

It has been an interesting year for healthcare reform and the Orphan Drug Act, and as I’m sure you are aware; the conversation isn’t over yet. Major changes to healthcare and tax reform continue to be discussed and that is why it is so important that now, more than ever, rare… Read More