Written by Mary Dunkle on May 27, 2016
Emergency room visits are a fact of life for many people with rare diseases. And, when the patient is a child, these experiences can be especially stressful for the entire family.
For that reason, NORD was delighted to host a tweetchat with Texas Children’s Hospital –… Read More
Written by Lisa Sencen on February 15, 2015
The bleeding disorders community will be recognizing Rare Disease Day on February 28, Hemophilia Awareness Month during the entire month of March, and World Hemophilia Day of April 17. These important dates were created to raise awareness and education about rare conditions like hemophilia and bleeding disorders.
NORD is thrilled to… Read More