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Archives for: June 15th, 2018

NORD Meets with HHS Secretary Azar to Discuss Needs of Rare Disease Patients

Written by Laura Mullen on June 15, 2018

Washington, D.C., June 15, 2018—On Wednesday, staff from the National Organization for Rare Disorders (NORD) met with Health and Human Services (HHS) Secretary Alex Azar to discuss the needs of rare disease patients. The meeting covered orphan drug innovation, growing patient involvement at the Food and Drug Administration… Read More

NORD Issues Statement on Confirmation of New Secretary of HHS, Alex Azar

Written by Laura Mullen on January 26, 2018

Washington, D.C., January 26, 2018—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement on the confirmation by the U.S. Senate of Alex Azar, as Secretary of the Department of Health and Human Services (HHS):

“We at the National Organization… Read More

Proposed Rules for Health Insurance Market Reforms and Essential Health Benefits

Written by on November 28, 2012

On November 20, 2012, the Centers for Medicare and Medicaid Services (CMS) released the long-awaited proposed rules for health insurance market reforms and essential health benefits. These provisions of the Affordable Care Act (ACA) are meant to protect patients with pre-existing conditions from discrimination and provide protections against other insurance… Read More