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Archives for: June 8th, 2022

NORD Applauds House Passage of H.R. 7667, the Food and Drug Amendments of 2022

Written by Rohan Narayanan on June 8, 2022

WASHINGTON, June 8, 2022—Today, the U.S. House of Representatives passed by a vote of 392-28 the Food and Drug Amendments of 2022 (H.R. 7667), legislation with significant implications for millions of Americans living with rare diseases. The bipartisan bill is an important step forward in reauthorizing the FDA’s medical product… Read More

NORD Applauds Congressional Efforts to Restore Intent of the Orphan Drug Act

Written by Rohan Narayanan on May 11, 2022

Washington, DC — The National Organization for Rare Disorders (NORD) applauds efforts of Congressional leaders to protect the Orphan Drug Act (ODA) and ensure proper incentives are in place to continue to foster robust rare disease drug development. Last week, leaders of the House Energy and Commerce Committee… Read More