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Archives for: November 10th, 2020

Fanconi Anemia Research Fund and NORD Launch Natural History Study of Fanconi Anemia

Written by Valaree DonFrancesco on April 3, 2020

This week, the Fanconi Anemia Research Fund (FARF) and the National Organization for Rare Disorders (NORD) launched the largest-ever study to research Fanconi anemia (FA), a patient-driven natural history registry that will result in a wide variety of clinical findings. Fanconi anemia currently has no cure.

The new study, “An observational… Read More

NORD Welcomes Prashant Goel as Vice President of Information Technology

Written by Valaree DonFrancesco on March 24, 2020

Washington, DC, March 24, 2020–The National Organization for Rare Disorders (NORD®) is pleased to welcome Prashant Goel as the new Vice President of Information Technology, based in the Danbury, CT office. Prashant, who joined NORD in February, leads a team of professionals with extensive knowledge of developing scalable enterprise-level systems,… Read More