Written by Rohan Narayanan on February 18, 2022
The following is a guest post from Tamar Thompson, Head of Corporate Affairs, Alexion.
Each year, on the last day of February, Alexion joins together with all those in the rare disease community to recognize Rare Disease Day, a global event led by EURORDIS that aims to raise awareness of… Read More
Written by Lisa Sencen on May 23, 2016
Save the date for the 2016 NORD Summit! Attendees can look forward to:
- Timely Topics
- Sessions on genetic innovation, collaborations across borders, reimbursement, pricing and access, off-label concerns, driving progress through policy and more.
- Inspiring Perspectives
- Hear from manufacturers, patients, advocates, legislative and regulatory leaders, academics,… Read More
Written by Jennifer Huron on September 15, 2015
Today, the FDA released a blog post about a new tool for drug developers. The FDA writes, “With the vast majority of rare diseases still without FDA-approved treatments, we have recently released a new resource for drug developers — draft guidance document — designed to help them… Read More