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Archives for: October 5th, 2016

Rare Diseases & Orphan Products Breakthrough Summit Speakers

Written by Jennifer Huron on October 5, 2016

RareSummit_Logo_RGB_smallWashington, D.C., October 5, 2016 – NORD, the leading independent nonprofit organization representing the 30 million Americans with rare diseases, today announced the three keynote speakers for its 2016 Rare Diseases & Orphan Products Breakthrough Summit to be held Oct. 17-18… Read More

Registries for Rare Diseases: Involve the Patient

Written by Jennifer Huron on January 15, 2015

In a new interview with Medscape, Marshall L. Summar, chief of genetics and metabolism at Children’s National Medical Center in Washington, D.C. and NORD marshallboard member, talks about the importance of patient registries for rare diseases, and the… Read More