Johns Hopkins University School of Medicine Archives - NORD (National Organization for Rare Disorders)

NORD Publishes New Rare Disease Report on Shprintzen Goldberg Syndrome (SGS)

Written by Lisa Sencen on September 12, 2017

Washington, D.C., September 15, 2017—As part of its ongoing series to promote awareness and education regarding rare diseases, the National Organization for Rare Disorders (NORD) has published a report on Shprintzen Goldberg Syndrome (SGS). This new resource is available free online to individuals around the world.

As the primary advocacy organization… Read More

Rare Disease Summer Family Camp: A Place to Call Home

Written by Lisa Sencen on February 13, 2017

NORD is pleased to be working with The Hole in the Wall Gang Camp again this year to host the second-ever rare disease summer family camp, June 1-4 in Ashford, Connecticut. For the second year, they will be hosting a special Summer Family Camp for children and families impacted by… Read More

Archives for: September 12th, 2017

NORD Publishes New Rare Disease Report on Shprintzen Goldberg Syndrome (SGS)

Written by Lisa Sencen on September 12, 2017

Rare Disease Summer Family Camp: A Place to Call Home

Written by Lisa Sencen on February 13, 2017

Alone we are rare. Together we are strong.®