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Archives for: February 22nd, 2021

Tara Z’s Story in Honor of Rare Disease Day

Written by Valaree DonFrancesco on February 22, 2021

I was diagnosed with stiff person syndrome (SPS) on a Monday night in October of 2017. The impact of my condition on my life has been tremendous. My symptoms started after I lost my former husband to suicide in 2014. My kids were eleven and… Read More

Rare Disease Summer Family Camp: A Place to Call Home

Written by Lisa Sencen on February 13, 2017

NORD is pleased to be working with The Hole in the Wall Gang Camp again this year to host the second-ever rare disease summer family camp, June 1-4 in Ashford, Connecticut. For the second year, they will be hosting a special Summer Family Camp for children and families impacted by… Read More