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Archives for: February 1st, 2022

Rare Disease Day: Yara’s Story

Written by Maia Craig on February 1, 2022
A photo of Yara

Leading up to #RareDiseaseDay on February 28, NORD is sharing stories from patients and caregivers impacted by rare disease. This week, we are sharing Yara’s journey with Jordan’s Syndrome and her family’s plan to raise awareness this #RareDiseaseDay. If you want to share your rare story in honor of… Read More