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Archives for: February 13th, 2017

Rare Disease Summer Family Camp: A Place to Call Home

Written by Christina Jensen on February 13, 2017
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NORD is pleased to be working with The Hole in the Wall Gang Camp again this year to host the second-ever rare disease summer family camp, June 1-4 in Ashford, Connecticut. For the second year, they will be hosting a special Summer Family Camp for children and families impacted by… Read More

New NORD PSA

Written by Jennifer Huron on August 12, 2015
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Sean Hepburn Ferrer, son of actress Audrey Hepburn, is calling for more awareness of rare diseases in a new PSA with the National Organization for Rare Disorders (NORD).

Audrey Hepburn died of a rare form of cancer and it was the way she lived her life, demonstrating that every life matters,… Read More