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Archives for: February 13th, 2017

Rare Disease Summer Family Camp: A Place to Call Home

Written by Lisa Sencen on February 13, 2017

NORD is pleased to be working with The Hole in the Wall Gang Camp again this year to host the second-ever rare disease summer family camp, June 1-4 in Ashford, Connecticut. For the second year, they will be hosting a special Summer Family Camp for children and families impacted by… Read More


Written by Jennifer Huron on August 12, 2015

Sean Hepburn Ferrer, son of actress Audrey Hepburn, is calling for more awareness of rare diseases in a new PSA with the National Organization for Rare Disorders (NORD).

Audrey Hepburn died of a rare form of cancer and it was the way she lived her life, demonstrating that every life matters,… Read More