Written by Rohan Narayanan on August 22, 2022
On June 29, 2022, NORD hosted the Living Rare, Living Stronger Patient and Family Forum live in Cleveland, Ohio and simultaneously to the rare disease community virtually across the globe. During the engrossing sessions and inspiring stories, expert speakers were asked questions on key rare disease topics and resources…. Read More
Written by Rohan Narayanan on June 30, 2022
NORD’s patient centric conference showcased inspiring individuals, expert resources and presentations, and a festive celebration at the Rock and Roll Hall of Fame
Cleveland, OH, June 29, 2022 – This week, the National Organization for Rare Disorders (NORD®) hosted the Living Rare, Living Stronger NORD Patient and Family Forum, NORD’s annual… Read More
Written by Valaree DonFrancesco on March 16, 2020
The health and safety of the rare disease community is always our top priority at NORD. With that in mind, the Living Rare, Living Stronger NORD Patient and Family Forum will no longer be held on May 14 -16.
We know… Read More