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Archives for: July 16th, 2021

NORD Announces This Year’s Heroes of Rare Disease: The 2021 Rare Impact Award Honorees

Written by Valaree DonFrancesco on February 23, 2021

Washington, DC, February 23, 2021 — Today the National Organization for Rare Disorders (NORD®) announced this year’s Rare Impact Award honorees. These outstanding individuals, organizations and industry innovators will be honored for their exceptional work benefiting the rare disease community in a virtual event streaming on June 28, 2021 at… Read More

Head of the Herd: Seth Rotberg, Co-founder, Our Odyssey

Written by Valaree DonFrancesco on July 31, 2020

At the head of the herd is… Seth Rotberg, Co-Founder, Our Odyssey

Seth most frequently checks his… Twitter or Instagram accounts

Seth advocates for… Young adults between the ages of 18 – 35 living with a rare disease or chronic condition

Seth is located in… Boston, Massachusetts

How Seth got here… When I was… Read More