Written by Laura Mullen on July 31, 2020

At the head of the herd is… Seth Rotberg, Co-Founder, Our Odyssey
Seth most frequently checks his… Twitter or Instagram accounts
Seth advocates for… Young adults between the ages of 18 – 35 living with a rare disease or chronic condition
Seth is located in… Boston, Massachusetts
How Seth got here… When I was… Read More
Written by Valaree DonFrancesco on April 23, 2020
The current COVID-19 pandemic necessitates a new approach to many aspects of life—particularly those that involve gathering together. The health and well-being of people living with rare diseases, their loved ones and those working to improve their lives are always top priorities at NORD.
With that in mind, we have made… Read More
Written by Lisa Sencen on June 21, 2019

Join NORD this June for a very special gathering of people living with rare diseases, and the medical professionals working to help improve their lives. Patients and families will gain insights and practical tools through educational sessions and discussions created just for… Read More