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Archives for: August 22nd, 2022

NORD’s Living Rare Forum and Rare Impact Awards Highlight Powerful Patient Stories and Community Rock Stars

Written by Rohan Narayanan on June 30, 2022

NORD’s patient centric conference showcased inspiring individuals, expert resources and presentations, and a festive celebration at the Rock and Roll Hall of Fame

Cleveland, OH, June 29, 2022 – This week, the National Organization for Rare Disorders (NORD®) hosted the Living Rare, Living Stronger NORD Patient and Family Forum, NORD’s annual… Read More

NORD Gives Back: Caregivers and Families

Written by Rohan Narayanan on November 26, 2021

As we reach the holiday season, let us take time to celebrate and lift up the rare disease community. For this season of giving thanks, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021 virtual Living Rare, Living Stronger Patient and Family Forum…. Read More

NORD Gives Back: Advanced and Advancing Care

Written by Rohan Narayanan on November 24, 2021

As we reach the holiday season at the end of another challenging but inspiring year, let us take time to celebrate and lift up the rare disease community.  For this season of giving, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive content from our 2021 virtual Living… Read More

NORD Gives Back: Benefits for the Newly Diagnosed

Written by Rohan Narayanan on November 22, 2021

As we reach the holiday season at the end of another challenging but inspiring year, let us take time to celebrate and lift up the rare disease community.  For this season of giving thanks, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021… Read More