Written by Rohan Narayanan on June 30, 2022
NORD’s patient centric conference showcased inspiring individuals, expert resources and presentations, and a festive celebration at the Rock and Roll Hall of Fame
Cleveland, OH, June 29, 2022 – This week, the National Organization for Rare Disorders (NORD®) hosted the Living Rare, Living Stronger NORD Patient and Family Forum, NORD’s annual… Read More
Written by Rohan Narayanan on November 26, 2021
As we reach the holiday season, let us take time to celebrate and lift up the rare disease community. For this season of giving thanks, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021 virtual Living Rare, Living Stronger Patient and Family Forum…. Read More
Written by Rohan Narayanan on November 24, 2021
As we reach the holiday season at the end of another challenging but inspiring year, let us take time to celebrate and lift up the rare disease community. For this season of giving, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive content from our 2021 virtual Living… Read More
Written by Rohan Narayanan on November 22, 2021
As we reach the holiday season at the end of another challenging but inspiring year, let us take time to celebrate and lift up the rare disease community. For this season of giving thanks, the National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021… Read More
Written by Valaree DonFrancesco on December 23, 2020
At NORDpod, we share our individual stories and experiences through bi-weekly conversations to celebrate (and sometimes commiserate) all the ways rare disease impacts our lives. This week’s episode is a supersized BONUS POD from the 2020 Living Rare Forum plenary session “Rare Storytelling Hour.” The session was… Read More
