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Archives for: February 25th, 2022

NORD Gives Back: Advocacy and Action

Written by Maia Craig on February 3, 2022

Members of the rare disease community go through many challenging issues regarding health equity, the diagnostic odyssey, access and affordability to proper treatments, and more. The National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021 virtual Living Rare, Living Stronger Patient and Family… Read More

NORD Gives Back: Rare Disease & Family Life

Written by Maia Craig on January 24, 2022

Being a family member or friend of someone with a rare disease can be a challenging experience. The National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021 virtual Living Rare, Living Stronger Patient and Family Forum to inspire hope and share experiences for… Read More

NORD Gives Back: Working, Aging or Living with a Rare Disease

Written by Maia Craig on January 18, 2022

After being diagnosed with a rare disease, your life can change drastically. The National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021 virtual Living Rare, Living Stronger Patient and Family Forum to inspire hope for those affected by rare diseases and their families.   Read More

NORD Gives Back: The Future of Rare

Written by Maia Craig on January 14, 2022

As we enter this new year, we are looking toward the future of the rare disease community. The National Organization for Rare Disorders (NORD) is sharing formerly exclusive, paid content from our 2021 virtual Living Rare, Living Stronger Patient and Family Forum. From engaging plenaries to breakout sessions to… Read More