Written by Lisa Sencen on February 3, 2017
By raising your hand, you can show your support for the 30 million Americans with rare diseases.
Simply click here and Lundbeck will donate $1 to rare disease research (up to $10,000 for the campaign). The donations will be added to a general research fund managed by NORD. The campaign will run through the month of February in honor of Read More
Written by Jennifer Huron on February 18, 2016
The National Organization for Rare Disorders (NORD), the leading independent, nonprofit organization committed to the identification, treatment, and cure of rare disorders, has awarded six new research grants to fund rare disease research.
“NORD research grants are funded primarily by patients, patient organizations, families and friends of patients who make possible the… Read More
Written by Jennifer Huron on April 13, 2015
On May 19, on one of the rare disease community’s biggest nights, we will honor the patients, leaders and innovators who are moving the community forward at NORD’s annual Portraits… Read More