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Archives for: September 3rd, 2021

Martin’s Fight Against Waldenstrom Macroglobulnemia

Written by Rohan Narayanan on September 3, 2021

I have been a healthy person my whole life. I never drank alcohol or smoked, and I had a good diet. In 2004, I began to have some questionable numbers on blood work, but my primary doctor could never really tell what was going on. My knees shook when I was referred to a hematologist and oncologist in 2010. I was given a diagnosis of Monoclonal gammopathy of undetermined significance (MGUS). I was… Read More

Voices of Rare Cancer: Susan’s Story

Written by Valaree DonFrancesco on October 1, 2019

Hi! I’m Susan from Philadephia. My journey began in 1991 when I visited a local dermatologist for a strange rash that didn’t go away. That day changed my life. A biopsy was taken and I was told I had a rare form of lymphoma called cutaneous T-cell, mycosis fungoides.

CTCL/MF is… Read More