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Archives for: October 16th, 2017

2017 Rare Diseases and Orphan Products Breakthrough Summit

Written by Christina Jensen on October 16, 2017

RareSummit_Logo_RGB_smallNORD’s Rare Diseases and Orphan Products Breakthrough Summit is the largest and most meaningful multi-stakeholder event of its kind – historically featuring over 20 speakers from the FDA, participation from over 80 patient organizations and the Pharma/Biotech industry’s foremost experts in orphan product innovation,… Read More

Protecting Your Healthcare Coverage

Written by Christina Jensen on September 18, 2017
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The new administration and Congress are re-examining the United States health insurance system with the goal of repealing the Affordable Care Act, and replacing it with a new system.

Before the Affordable Care Act was enacted in 2010, rare disease patients faced discriminatory insurance practices due to their pre-existing condition. Patients… Read More