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Archives for: May 20th, 2019

Madison Shaw: 2019 Rare Impact Award Honoree

Written by Lisa Sencen on May 20, 2019

Living through a lengthy diagnostic odyssey is unfortunately very common for rare disease patients. Madison “Maddie” Shaw’s journey to diagnosis took place over an intense and frustrating two and a half years when she was 12 and included acute infections, multiple hospitalizations and almost two dozen befuddled doctors…. Read More