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Archives for: May 20th, 2019

Madison Shaw: 2019 Rare Impact Award Honoree

Written by Lisa Sencen on May 20, 2019

Living through a lengthy diagnostic odyssey is unfortunately very common for rare disease patients. Madison “Maddie” Shaw’s journey to diagnosis took place over an intense and frustrating two and a half years when she was 12 and included acute infections, multiple hospitalizations and almost two dozen befuddled doctors…. Read More

NORD Announces Honorees for 2019 Rare Impact Awards

Written by Lisa Sencen on March 12, 2019

Washington, DC, March 12, 2019—The National Organization for Rare Disorders (NORD) today announced the individuals, organizations and industry innovators who will be honored for their outstanding work in support of the rare disease community at this year’s Rare Impact Awards on June 22.

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