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Archives for: May 7th, 2017

Providence Full and Half Marathon

Written by Christina Jensen on May 7, 2017

Running for Rare, NORD’s signature charity marathon team, will be participating in the 2017 Providence Marathon. Click here to apply.


About the Team

When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for… Read More

St. Jude Rock ‘N’ Roll Nashville Marathon

Written by Christina Jensen on April 29, 2017

Running for Rare, NORD’s signature charity marathon team, will be participating in the 2017 Nashville Marathon. Click here to apply.


About the Team

When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for… Read More

Boston Marathon

Written by Christina Jensen on April 17, 2017

Running for Rare, NORD’s signature charity marathon team, will be participating in the 2017 Boston Marathon. Applications for this marathon are closed.


About the Team

When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for Rare offers… Read More

Los Angeles Marathon

Written by Christina Jensen on March 19, 2017

Running for Rare, NORD’s signature charity marathon team, will be participating in the 2017 Los Angeles Marathon. Click here to apply.


About the Team

When you join Running for Rare, you are joining a group of individuals who are passionate and committed to an important cause. Running for… Read More

Running on Air for Rare Disease Day

Written by Lisa Sencen on February 11, 2016

“I want to shake up what people think is possible,” says Mary Kitlowski – “ both people with rare diseases, and people without. If I can make a difference by doing it, it makes it worth it.”

Mary has taken on what for most seems insurmountable – running races… Read More