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Archives for: August 20th, 2019

NORD’s Mary Dunkle Comments on Diagnosis Challenges and Urges Caution on Using Internet Sources in New Article

Written by Valaree DonFrancesco on August 20, 2019

In a recent article published by HealthDay entitled “‘Dr. Google’ Helps Some Patients Diagnose a Rare Disease,” NORD’s Mary Dunkle notes common reasons for rare disease diagnosis delays and cautions patients and caregivers regarding online sources, recommending that people “use only trusted sources such as the U.S. National Institutes of… Read More

NORD Seeks Proposals for CME Partnership

Written by Lisa Sencen on October 8, 2018

The National Organization for Rare Disorders is seeking a partner to collaborate on the development of educational resources for medical professionals. NORD has published a Request for Proposals inviting accredited CME providers to respond with proposals by November 16.

 

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NORD Hosts Tweetchat with Texas Children’s Hospital on Navigating the Pediatric ER (May 26)

Written by Lisa Sencen on May 25, 2016

May 26, 2016
1:00 – 2:00 p.m. EDT

#RareERChatNORD

A trip to the emergency room with a rare disorder can present challenges. For one,… Read More