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Archives for: August 20th, 2019

NORD’s Mary Dunkle Comments on Diagnosis Challenges and Urges Caution on Using Internet Sources in New Article

Written by Laura Mullen on August 20, 2019

In a recent article published by HealthDay entitled “‘Dr. Google’ Helps Some Patients Diagnose a Rare Disease,” NORD’s Mary Dunkle notes common reasons for rare disease diagnosis delays and cautions patients and caregivers regarding online sources, recommending that people “use only trusted sources such as the U.S. National Institutes of… Read More

NORD Seeks Proposals for CME Partnership

Written by Lisa Sencen on October 8, 2018

The National Organization for Rare Disorders is seeking a partner to collaborate on the development of educational resources for medical professionals. NORD has published a Request for Proposals inviting accredited CME providers to respond with proposals by November 16.

 

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Tweetchat on Pediatric Cancers, #KidsCancerChat

Written by Lisa Sencen on September 21, 2016

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September is Pediatric Cancer Awareness Month. Did you know that all pediatric cancers are rare?

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