Mary Dunkle Archives - NORD (National Organization for Rare Disorders)

Fibrolamella Cancer Foundation Thanks NORD for Help with SSA Compassionate Allowance Listing

Written by Christina Jensen on August 23, 2018

The following is a guest blog post from John Hopper, President of the Fibrolamellar Cancer Foundation, a NORD Member Organization.

Huge thanks to NORD leadership! Fibrolamellar Cancer was just approved as one of the Social Security Administration Compassionate Allowance diseases. Why? Because great people… Read More

A New Partnership that Helps Raise Awareness of Rare Diseases

Written by Jennifer Huron on September 30, 2016

We’re thrilled to announce a new partnership that will help raise awareness of rare diseases and connect The Mighty‘s wide-reaching readership with NORD resources. As part of the partnership, NORD, the leading independent 501(c)(3) advocacy organization dedicated to helping people with rare diseases, now has a growing… Read More

Tweetchat on Pediatric Cancers, #KidsCancerChat

Written by Christina Jensen on September 21, 2016

September is Pediatric Cancer Awareness Month. Did you know that all pediatric cancers are rare?

Tweetchat Coordinates

Written by Christina Jensen on May 25, 2016

May 26, 2016
1:00 – 2:00 p.m. EDT

#RareERChatNORD

A trip to the emergency room with a rare disorder can present challenges. For one,… Read More

NORD to Hold Rare Diseases Roundtable

Written by Jennifer Huron on May 12, 2016

The National Organization for Rare Disorders (NORD) will host a roundtable on May 17 with a wide range of stakeholders who are creating positive change across the rare disease community.

The roundtable will be held at the Warner Theatre in… Read More

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Archives for: August 23rd, 2018