A trip to the emergency room with a rare disorder can present challenges. For one,… Read More
Written by Jennifer Huron on May 12, 2016
The National Organization for Rare Disorders (NORD) will host a roundtable on May 17 with a wide range of stakeholders who are creating positive change across the rare disease community.
The roundtable will be held at the Warner Theatre in… Read More
Written by Jennifer Huron on December 4, 2015
Sudden Infant Death Syndrome (SIDS) is the latest rare disease to have trended on Facebook, following the release of a new study in Pediatrics journal on December 2. The study says that there are other factors, such as babies being exposed to smoking, which can increase the risk of sudden… Read More
Written by Jennifer Huron on August 24, 2015
A new video released today by the National Organization for Rare Disorders (NORD) fills a gap in health care by educating patients and doctors about a rare medical condition known as Neurogenic Orthostatic Hypotension (nOH), and how to improve patient outcomes.
“Living with a rare condition like nOH affects every part of… Read More
Written by Mary Dunkle on December 1, 2014
The National Organization for Rare Disorders (NORD) focused a spotlight on individuals and families who display great courage as they live with rare diseases at its Portraits of Courage Celebration last night.