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Archives for: May 25th, 2016

NORD Hosts Tweetchat with Texas Children’s Hospital on Navigating the Pediatric ER (May 26)

Written by Lisa Sencen on May 25, 2016

May 26, 2016
1:00 – 2:00 p.m. EDT


A trip to the emergency room with a rare disorder can present challenges. For one,… Read More

NORD to Hold Rare Diseases Roundtable

Written by Jennifer Huron on May 12, 2016

NORD_RareImpactAwards2016_Program_Page6The National Organization for Rare Disorders (NORD) will host a roundtable on May 17 with a wide range of stakeholders who are creating positive change across the rare disease community.

The roundtable will be held at the Warner Theatre in… Read More

New SIDS Study Says Other Factors May Increase Risk

Written by Jennifer Huron on December 4, 2015

Sudden Infant Death Syndrome (SIDS) is the latest rare disease to have trended on Facebook, following the release of a new study in Pediatrics journal on December 2. The study says that there are other factors, such as babies being exposed to smoking, which can increase the risk of sudden… Read More