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Archives for: December 16th, 2013

Genzyme and NORD Establish Program to Help Undiagnosed Patients with Rare Diseases

Written by Mary Dunkle on December 16, 2013

CAMBRIDGE, MA and DANBURY, CT—-Genzyme, a Sanofi company, and the National Organization for Rare Disorders (NORD) today announced the creation of a fund to pay for standard diagnostic testing for people with mysterious, undiagnosed medical conditions.  The fund will help those who have applied to the National Institutes of Health… Read More

NORD Issues Statement on the Death of Actor Jack Klugman

Written by Mary Dunkle on December 25, 2012

Jack Klugman touched the lives of millions of Americans through his support for what ultimately became the Orphan Drug Act.  By portraying on his Quincy, M.E. television show the plight of people with rare diseases with no treatment, Mr. Klugman focused a spotlight on the need for incentives to encourage… Read More