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Archives for: November 1st, 2019

NORD supports Dr. Stephen Hahn’s nomination for FDA commissioner

Written by Valaree DonFrancesco on November 1, 2019

On Friday, November 1, 2019, the White House announced the nomination of Dr. Stephen Hahn, MD, as the next US Food and Drug Administration (FDA) commissioner. In response, the National Organization for Rare Disorders (NORD) offers support to the appointment of Dr. Hahn as the next FDA commissioner.

Dr. Hahn will… Read More

Voices of Rare Cancer: Nicole’s story

Written by Laura Mullen on September 27, 2019

My name is Nicole and I was diagnosed with Stage 3 sarcoma cancer in July 2017 at the age of 27. It was bizarre being diagnosed with cancer in the first place, but to be diagnosed with a cancer I had never heard of was even more odd…. Read More