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Archives for: September 26th, 2017

NORD Issues Statement on Senate Leadership’s Recent Update on “Graham-Cassidy” Proposal

Written by Christina Jensen on September 26, 2017

Washington, D.C., September 26, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the latest effort to repeal and replace the Affordable Care Act:

“Senate Leadership announced today that they will not proceed with a… Read More

NORD Issues Statement Opposing the “Graham-Cassidy” ACA Replacement Plan

Written by Christina Jensen on September 19, 2017

The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement opposing the “Graham-Cassidy” plan to repeal and replace the Affordable Care Act (ACA):

“The Senate is currently considering a proposal put forward by Senators Graham, Cassidy, Heller,… Read More

The BCRA and Healthcare Reform: NORD’s Latest Update

Written by Paul Melmeyer on July 20, 2017

A note from Paul Melmeyer, NORD’s Director of Federal Policy, on where healthcare reform stands as of today and how to get involved.


As part of our “Days of Action to Protect Your Healthcare Coverage” campaign, we want to be sure that you are up-to-date on the latest… Read More

NORD Issues Statement Regarding the Release of Revised Draft of the Better Care Reconciliation Act

Written by Christina Jensen on July 13, 2017

Washington, D.C., July 13, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the release of a revised draft of the Senate Leadership’s Better Care Reconciliation Act of 2017:

Senate Leadership today released a revised… Read More