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Archives for: July 20th, 2017

The BCRA and Healthcare Reform: NORD’s Latest Update

Written by Paul Melmeyer on July 20, 2017

A note from Paul Melmeyer, NORD’s Director of Federal Policy, on where healthcare reform stands as of today and how to get involved.


As part of our “Days of Action to Protect Your Healthcare Coverage” campaign, we want to be sure that you are up-to-date on the latest… Read More

NORD Issues Statement Regarding the Release of Revised Draft of the Better Care Reconciliation Act

Written by Christina Jensen on July 13, 2017

Washington, D.C., July 13, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement regarding the release of a revised draft of the Senate Leadership’s Better Care Reconciliation Act of 2017:

Senate Leadership today released a revised… Read More

NORD Joins 86 Organizations to Call on Congress to Protect Medicaid

Written by Jennifer Huron on March 20, 2017

Washington, D.C., March 20, 2017 – The National Organization for Rare Disorders (NORD) and 86 other organizations issued a letter today calling on Congress to take a hard look at the likely significant and life-threatening consequences of the American Health Care Act on millions of patients. The organizations represent Americans… Read More

NORD Issues Statement as House Committees Review the American Health Care Act

Written by Jennifer Huron on March 8, 2017

Washington, D.C., March 8, 2017—The National Organization for Rare Disorders (NORD), the leading independent nonprofit organization representing the 30 million Americans with rare diseases, issued the following statement in advance of today’s hearings on the American Health Care Act:

“Monday evening, House Republicans released their long-awaited Affordable Care Act (ACA) replacement… Read More