Scroll
To Top

Archives for: June 16th, 2022

NORD’s Pamela Gavin Interviewed on Health Equity by PharmaBoardroom for Rare Disease Day

Written by Valaree DonFrancesco on February 26, 2021

PharmaBoardroom, an international pharmaceutical industry media outlet providing industry trends, news and reports geared to senior professionals, recently interviewed Pamela Gavin on the importance of health equity and what NORD is doing towards achieving equity for the rare community in the United States.

The interview can be read in its entirety… Read More

NORD and Coalition Representing Millions of Patients Urge Policymakers to Adopt “Patient-First” Policy Agenda

Written by Heidi Ross on November 3, 2020

NORD joined a coalition of 33 other patient organizations representing millions of people with pre-existing conditions to release our top priorities for a new administration. “The 100 Days Agenda: A Patient-First Blueprint” is a first-of-its-kind collaboration that outlines specific steps the president and other elected officials can immediately… Read More

Nebraska Medicaid Expansion Is Progress for Rare Disease Patients, Highlights Critical Need to Support Medicaid During COVID-19

Written by Corinne Alberts on October 1, 2020

Today, Nebraska’s Medicaid expansion begins to take effect. This milestone—two years in the making—means that thousands more low-income people, including many who have a rare disease, now have access to health care coverage.

Nebraska is the latest in the long line of successful ballot initiatives to expand Medicaid. Since the… Read More