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Archives for: September 6th, 2018

NORD 35th Anniversary Blog Series: 2010-2018 (Present)

Written by Jennifer Huron on September 6, 2018

2018 is a big year for the rare disease community – NORD is celebrating its 35th anniversary.  For the past 35 years, NORD has taken pride in being the rare disease community’s biggest advocate.  Our policy, research and other efforts have played a significant… Read More

Patients Will Benefit From New Public-Private Partnership

Written by on December 3, 2012

FDA Commissioner Margaret Hamburg, MD, today announced a new public-private partnership to develop regulatory science that will speed patient access to new medical device technologies.  This is the first public-private partnership specifically focusing on this need. (more…)

#Running4Rare? Runners are paired with… https://t.co/6cOVAML8vW
  • .@SenBlumenthal (D-CT) supports #RareCancerDay, coming up Sept. 30, and its goal of raising awareness of rare cance… https://t.co/wVQ4HHGODJ
  • In case you missed it, the @US_FDA Listening Session: #COVID19 Impact on #RareDisease Communities is now available… https://t.co/UJBGsmZZ8c
  • .@HCUAmerica & @OrganicAcidemia would like to announce The Land of the Free, Home of the Brave, Family Conference,… https://t.co/5OFP4Xl6Bg