Written by Christina Jensen on January 18, 2018
During the 2017 Rare Diseases & Orphan Products Breakthrough Summit over 700 individuals from the rare disease community gathered to advance the dialogue in rare diseases. NORD was pleased to have a large group of student chapter leaders involved with the event in 2017. One leader,… Read More
Written by Mary Dunkle on January 18, 2016
The National Organization for Rare Disorders (NORD) has established a Patient/Caregiver Speakers Bureau through which volunteers will share their stories to promote better understanding of the challenges of living with a rare disease.
Speakers will be paired with opportunities to speak in… Read More
Written by Mary Dunkle on September 2, 2015
A few months ago, NORD and our members hosted a “Meet the Patients” event at the annual conference of the American Medical Student Association (AMSA). We were thrilled with the number of students who came to our booth and the interest they displayed.
Since then, more than 100 students have signed… Read More